Bedfordshire Support Group

Upcoming Support Group Sessions

Date and Time Details Place Topic
Wednesday 16th January 2019 7:00pm - 9:00pm This is an informal general support meeting where our topic will be New Research and information Starbucks, Luton Retail Park DT Gipsy Lane Luton ENG LU1 3JH General support, Coffee evening

Meet the Support Group Leader(s)

Deborah

My Story:

I was diagnosed with endometriosis in September 2007, sadly, following a rather long diagnosis period. I had never heard of endometriosis and felt there was no one to turn to about my pain and other symptoms I was experiencing. I found it  really difficult to talk about it until I met with others who shared their own experiences and  there and then I knew I was part of a group that understood and could support each other.

Cat

My Story:

I was finally diagnosed in Nov 2016 after an routine MRI scan. Unfortunately the endometriosis was so severe I needed an urgent procedure to save my kidneys just 2 weeks later. In 2017 I had two major operations to remove as much endometriosis as possible and also had an ileostomy bag for 6 months whilst parts of my bowel recovered. Unfortunately in April 2018 I lost one of my kidneys because it was too damaged from the endometriosis. I am determined to do as much as possible to raise awareness of this condition and provide support to other women who are suffering. So with that in mind I became a support group co-leader in September 2018. 

About the support group:

Our support group is a place where we can find information, support and understanding with women in similar situations. Mostly they will be relaxed, informal groups and where possible we will have speakers. I also hope to promote fundraising and awareness within the local community.
It’s so very important to know that you are not alone and I really look forward to meeting you!