Bedfordshire Support Group

Upcoming Support Group Sessions

Date and Time Details Place Topic
Wednesday 03rd April 2019 7:00pm - 9:00pm Topic: 'Painful periods, what do I do now?' Starbucks, Luton Retail Park - Gipsy Lane - LU1 3JH General support

Meet the Support Group Leader(s)

Deborah

My Story:

I was diagnosed with endometriosis in September 2007, sadly, following a rather long diagnosis period. I had never heard of endometriosis and felt there was no one to turn to about my pain and other symptoms I was experiencing. I found it  really difficult to talk about it until I met with others who shared their own experiences and  there and then I knew I was part of a group that understood and could support each other.

Cat

My Story:

I was finally diagnosed in Nov 2016 with stage 4 after a routine MRI scan. Unfortunately the endometriosis was so severe I needed an urgent procedure to save my kidneys just 2 weeks later. In 2017 I had two major operations to remove as much endometriosis as possible and also had an ileostomy bag for 6 months whilst parts of my bowel recovered. Unfortunately in April 2018 I lost one of my kidneys because it was too damaged from the endometriosis. I am determined to do as much as possible to raise awareness of this condition and provide support to other women who are suffering. So with that in mind I became a support group co-leader in September 2018. 

About the support group:

Our support group is a place where we can find information, support and understanding with women in similar situations. Mostly they will be relaxed, informal groups and where possible we will have speakers. I also hope to promote fundraising and awareness within the local community.
It’s so very important to know that you are not alone and I really look forward to meeting you!