News

Announcing new Patient Leader role for Carol Pearson

Carol Pearson will become Endometriosis UK’s first Patient Leader, an exciting new volunteer role for the organisation.  Carol has stepped down from Endometriosis UK's Board of Trustees where she was a Trustee from 2008 - 2010 and 2011 – 2015, and served as Treasurer.

Carol has worked with the Endometriosis UK team to develop a new volunteer Patient Leader role for the organisation, ensuring that the voice of those with lived experience of endometriosis continues to shape our work.

Statement on 'Tampon Tax'

Endometriosis UK welcomes the Government's commitment in this week's Autumn Statement to setting up a £15m fund for women's charities. 

#GivingTuesday

Giving Tuesday is an opportunity to come together to show the world why it’s good to give. 

Women need a National Strategy for endometriosis

Endometriosis UK calls for the Government to create a National Strategy for this long term condition.

This will set quality standards for endometriosis care. It will set out a clear clinical pathway for patients who have endometriosis.

The National Strategy will reduce diagnosis time, raise awareness of the condition and improve the quality of services. It will promote a multi-disciplinary approach, support patients to take an active part in their care and develop an evidence base to improve outcomes.

Endometriosis makes Front Page News

Endometriosis UK is delighted that The Guardian is raising awareness of this little known but common and life-changing disease, and supports its comments on the lack of funding for treatment and support.

Endometriosis UK statement on availability of Visanne in the UK

Endometriosis UK statement on availability of Visanne in the UK

"Treatments are a very individual choice and what works for one person won’t necessarily work for another. For this reason Endometriosis UK does not advocate specific treatments including drug treatments. However as an organisation we strongly believe that women in the UK should be able to choose the right drug treatment for them. In this sense we support the availability of all drug treatments in the UK for women with endometriosis."

Jane Hudson Jones
Endometriosis UK

Are you living with chronic pain?

The University of Oxford is carrying out a research study that will look at the impact chronic pain has on female hormone levels in women of childbearing age.

NICE is recruiting patients, carers and other lay members

NICE is updating part of its guideline on Fertility – specifically looking at uterine insemination (IUI).

Big Lottery Award Press Release

Endometriosis UK is delighted to announce an award from Big Lottery via Awards for All Wales.

Donate by Direct Debit

We now have the facility to take Direct Debit payments online.

Pages

Subscribe to RSS - News