#TooLong Campaign

Currently, the average time to diagnose endometriosis is 7.5 years. This is #TooLong and constitutes an injustice for women and girls across the country.

Please take part in our #TooLong Campaign and help us change this.


What's your word? Photos

These are the photos we've received so far! We still need more.

Take part and submit your own photo.

Your word, combined with powerful words from others will help show exactly how it feels to have endometriosis. 

Don't suffer in silence.

Share your story!

Image of a person writing a letter to share their story

Do you have a story to share?

We’d like to hear from you!


Do you want to be part of a movement that drives positive change for people affected by endometriosis?

Endometriosis UK is dedicated to campaigning and raising awareness to improve the lives of people affected by endometriosis. 1 in 10 women in the UK suffer from this often debilitating disease in the UK, but the condition still remains relatively unknown.

Get involved

Endometriosis UK fundraisers

Get involved with Endometriosis UK and help continue to support those affected by endometriosis

Endometriosis devastates the lives of women and their families. We help them take back control. One in ten women endure unrelenting pain that affects every aspect of their lives each day. Endometriosis UK provide vital support services, reliable information and a community for those affected by endometriosis.

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