Katie

I feel we could all write a book about our story but I’ll try and wrap mine up so it’s not a novel. But I do hope you find some comfort in mine knowing you aren’t alone 🤍 

For over a decade, I battled health issues and the healthcare system. Since childhood I’ve suffered with stomach pains and chronic constipation. I came on my period when I was 11 and the pain has intensified throughout the years. I suffer with: excruciating period and ovulation pain, migraines, hormonal acne, fatigue, pain when emptying my bladder and bowel, severe constipation, constant sharp pain in the left side of my stomach as well dyspareunia. The list goes on. However despite all this, I was constantly getting ignored by GPs and never getting any answers. 

In my twenties, I began tracking my symptoms and changing doctors finally led to an internal ultrasound, revealing PCOS. However this didn’t explain all my symptoms, still confused, I researched further, discovering the endometriosis community. I questioned my GP if  my pain could be due to endometriosis but I was told as I had a clear ulltrasound this wouldn’t be the case, however I knew from my research this isn’t always correct, so I pushed for a laparoscopy and was put on the waiting list. 

However after waiting over 2 year to be seen my pain was unbearable and I had to go private. I saw a specialist in England due to a lack of endometriosis specialists in Wales. 

I will never forget the feeling after surgery and being told I have endometriosis. All those years of the unknown and gaslighting and I finally have my answer.  I had Endometriosis over my bladder, affecting my bowel, under my ovaries as well as rectovaginal endometriosis. 

Unfortunately for me despite excisions and adhesion removal, ongoing bladder and bowel issues persist.I am currently waiting to be seen again. 

Living with endometriosis is an exhausting daily battle. I felt very  lonely on my diagnosis journey and was inspired me to create a support group, as I know there is very little in this area. Since my operation I have met lots of amazing people on this journey and sharing my experiences and listening to other has been  incredibly empowering. I would love to also give you this opportunity. 

While I can't cut waiting times or offer medical advice, I extend an invitation to our community for monthly meet-ups (in person/online) talks, and resources. Never give up the fight for your health; you are your biggest advocate. Your bravery in seeking support is commendable.

Looking forward to speaking with you/meeting you soon! 

Katie 💛