London Support Group

Upcoming Support Group Sessions

Date and Time Details Place Topic
Saturday 12th January 2019 11:00am - 12:30pm Come and join us for a coffee morning/general support meeting in a less formal setting. Cafe Nero, 126 Tottenham Court Road, London, W1T 5AT General support, Social
Saturday 19th January 2019 10:00am - 12:30pm Coffee morning; general support; perfect spot for dietary requirements and to try new food / drinks! Deliciously Ella, 18 Weighhouse St, Mayfair, London W1K 5LU General support, Coffee evening, Social
Tuesday 19th February 2019 6:30pm - 8:00pm Professor Rymer (specialist surgeon) will be speaking: covering endometriosis, treatments and associated topics Guys Hospital: McNair Centre, Southwark Wings, Guys hospital at London Bridge Guest speaker

Meet the Support Group Leader(s)

Helen

My Story:

I was diagnosed in 2011, and understand how living with the disease physically and mentally impacts every aspect of your life. I started volunteering for Endometriosis UK in 2015 because I want to help to improve support for sufferers and their loved ones. By bringing people together I hope that no one feels that they have to suffer alone.

Jillian

My Story:

I was diagnosed in 2016, after years of heavy menstrual bleeding, pain, and being dismissed by doctors. I joined the group because I don’t want anybody to stop seeking help when they have been dismissed. I strive to create a safe space to be around people who understand what you are going through. 

Tijen

My Story:

I was diagnosed in 2016 when doctors discovered an endometrial cyst following fertility tests to find out why I wasn't conceiving naturally. I had been to my GP five years before this with various symptoms that led me to suspect I'd had endometriosis since I was a teenager, but I was dismissed and told there was nothing that could be done about it. I know how frustrating it is not to feel heard. I want to support others get the information they need. 

Bhavni

My Story:

I was diagnosed in 1999 at the age of 22 and have almost 20 years experience in understanding and living with this condition.  Like many women, my journey was not straightforward and has involved multiple surgeries, various hormone treatments and has impacted my fertility. 

I know what a lonely and daunting experience it can be and decided to join the group so that I can help support other women.

Natascha

My Story:

I was diagnosed with endometriosis in 2007, although I first presented to a doctor 16 years earlier. After three years of being essentially bedridden with pain, I had a second surgery in 2013 which helped me to manage the disease. I have facilitated other groups for people with various long term chronic health conditions and have found this so rewarding. I wanted to extend this to other women living with endometriosis.

Clare

My Story:

I was told I had endometriosis in 2016 and had my first surgery in 2017. I had a relatively easy path to diagnosis as I had cysts which showed up on imaging. I have a family history of endometriosis and really wanted to get involved with the support groups because I know how incredibly difficult diagnosis has been for the majority of women and how lonely endometriosis can be.