Cumbria Support Group

Upcoming Support Group Sessions

Date and Time Details Place Topic
Thursday 05th December 2019 7:00pm - 9:00pm Launch of Endometriosis UK Cumbria! Endo what? Veena Rao, EUK Trustee & GP, Cockermouth Lamplighter Dining Rooms, High Street, Windermere, LA23 1AF Cumbria Guest speaker

Meet the Support Group Leader(s)

Elaine

My Story:

I was diagnosed with endometriosis in Paris in 2009.

As part of my treatment, I was injected with Decapeptyl SR (triptorelin) which lasted for three months. However, as I reacted very badly to it, I decided not to go ahead with the second injection.

I was also prescribed hormones. However, after taking a few and really not feeling myself, I decided not to take any more.

As I didn’t want to go on the pill again, I decided to just manage the pain by taking prescribed anti-inflammatory tablets and spending a lot of time suffering in bed often after a period of writhing on the floor in pain...

In 2015, when my gynaecologist told me that I would need a resection of the deep lesions I had, probably a bowel resection and very likely a hysterectomy, I was in shock...

After thinking about it for 6 months, I decided not to have any part of my body removed but to research the condition for myself and seek alternative ways to managing this pain.

This led me down a path of discovering how dietary and lifestyle changes can help reduce inflammation in the body.

Over the next three years, I found a number of complementary treatments which enabled me to live a life without experiencing pain every day.

Although, I still may take a few anti-inflammatory tablets every month (flurbiprofen) and experience vomiting, I’m no longer obsessed with pain management on a daily basis.

I moved from Paris to Cumbria in 2019.

Realising that there was no support group in the region, I contacted Endometriosis UK at the end of July to ask about the possibility of setting up a support group in the region.

In October 2019, the Cumbrian group was officially set up.

Despite the challenges of managing a community in such a large, rural area, I’m excited about facilitating events where women with endometriosis can share their stories in a confidential environment, receive support and get information to help them deal with any challenges they may face living with the condition, in person and remotely.

I also feel privileged to co-create an environment where both men and women whose lives are impacted in some way by someone with endometriosis, can come and increase their awareness of the disease and provide support in practical ways.

My intention is also to create a space where fun and socialising is the norm!

I look forward to meeting you soon!

About the support group:

Endometriosis UK Cumbria - Inform, Share & Support

Reaching and making a difference to women struggling with the effect endometriosis has on their lives. We aim to:

  • Provide information – We help women who suffer from endometriosis (and also men whose lives that affects) understand the condition through discussion, expert speakers and  publication hand outs.
  • Give support – We create a safe, supportive and confidential environment for women with endometriosis to meet and talk with others who share and understand their situation.
  • Facilitate gender partnerships –  We encourage men and women to work together in this space to end menstrual taboo.
  • Partner with businesses - We encourage local companies to sign up to the Endometriosis Friendly Employer Scheme.
  • Have fun together!

Interview on BBC Radio Cumbria with Emma Cox, CEO of Endometriosis UK and Elaine Rémy, Volunteer Support Group Leader of Endometriosis UK Cumbria (1:17.00 - 1:23:05)

General Session Information:

Our meetings will be held once a month on a Wednesday or Thursday evening.
REGULAR VENUE/MEETING POINT
Lamplighter Dining Rooms (Bar), High Street, Windermere, LA23 1AF, Cumbria
The Bar is a privatised space with a separate entrance, facilities, dining room and bar.
You will be required to purchase your own food and drinks.
Wheelchair access is available a few metres from the entrance to the bar.
https://goo.gl/maps/Q7kpN8dnNR32yqU78
ACCESS BY CAR - Parking
Venue car park and surrounding area
ACCESS BY TRAIN
Windermere Train Station (4-minute walk from venue)
ACCESS BY BUS
Windermere Bus Station (4-minute walk from venue)
6, 505, 508, 516, 541, 555, 597, 599, 755, X8
We also intend on holding meetings in other parts of Cumbria from time to time.

Agenda for launch on 05/12/2019
5.30pm – 6.45pm Optional dinner. Reservation required (CumbriaGroup@endometriosis-uk.org)
7.00pm – 7.30pm Welcome, introductions, about EUK
7.30pm – 8.30pm Endo what? Veena Rao, GP & EUK Trustee
8.30pm – 9.00pm Close & socialising (women only)
A remote access link is available upon request by sending an email to CumbriaGroup@endometriosis-uk.org.