The simple fact is that not enough people know what endometriosis is - meaning those affected by the disease often find themselves having to constantly explain themselves - to friends, family, their employer and work colleagues, and even healthcare practitioners. This Endometriosis Action Month, we’ll be shining a light on what endometriosis is, the symptoms, and the impact of the disease.
“More often than I would like, I have to defend or explain my endometriosis to friends, family, doctors, and even complete strangers. Since the condition is hidden from the outside, many people find it difficult to comprehend how serious it is. It can be stressful and alienating when friends and family believe I'm exaggerating the agony or that it's "just bad periods."” - Leah submitted via Share your Story form.
We’re taking action by…
- Raising your voices with governments and healthcare decision makers, hosting events in all four nations to connect with politicians, making them aware of the impact of endometriosis and the change needed to improve the lives of those with the disease. Invite your local representative to attend here.
- Sharing valuable information and resources for those living with diagnosed or suspected endometriosis and their loved ones and working to reach more of those who have not yet heard of endometriosis
- Highlighting your stories to improve public understanding of the true impact that endometriosis can have on day-to-day life
- Connecting with employers to improve understanding of endometriosis and its impact at work and increase workplace support
- Fundraising to continue to expand our vital support services and information provision
Will you join us in taking action this Endometriosis Action Month?
Click here to find out more about the actions you can take this March.
