This is Leah's Story
My experience with endometriosis started in my early teens when I became aware of symptoms that interfered with my everyday life, such as severe pelvic pain, heavy periods, and exhaustion. As the symptoms grew worse over time, I decided to get help from a doctor. However, because my suffering was frequently disregarded or misdiagnosed, the path to diagnosis was lengthy and difficult.
I eventually received a diagnosis of endometriosis and adenomyosis following a number of consultations and testing. Since then, I've had three cycles of chemically induced menopause, the longest of which lasted a year, and two laparoscopic procedures. I continue to experience persistent pelvic discomfort that has a major influence on my life in spite of these interventions.
I have suffered greatly as a result of the condition. I've had to quit my job, quit university, and even return my car because I'm in too much agony to drive. On certain days, the agony is so severe that I have to get around in a wheelchair. I'm waiting for a hysterectomy currently in the hopes that it would provide me some relief and return my life to normal.
More often than I would like, I have to defend or explain my endometriosis to friends, family, doctors, and even complete strangers. Since the condition is hidden from the outside, many people find it difficult to comprehend how serious it is. It can be stressful and alienating when friends and family believe I'm exaggerating the agony or that it's "just bad periods."
My interactions with medical professionals have been inconsistent throughout all of this. I've come across sympathetic professionals who listened, offered support, and made me feel that I was not alone in my challenges, even though some of them were dismissive.
While looking for assistance and information during one of my most difficult times, I came across Endometriosis UK. For me, their resources and sense of community have been invaluable. In addition to improving my understanding of my condition, their work has introduced me to others who are genuinely aware of both the mental and physical toll it takes.
I hope my story encourages more awareness and activism for those with this disease and helps others feel less alone. Know that there is support and understanding available if you are dealing with endometriosis.
Thank you Leah for sharing your story.
If you have a story to tell, we'd love to hear from you. Click here to Share your story.
While we are unable to share all stories publicly, every story counts to improving our understanding of the diverse experiences of those with endometriosis, informing our work to better support you and campaign for the change you deserve.
