"If going through my university experience with suspected endometriosis taught me anything, it's that I am still capable of living a fulfilled life despite the pain and fatigue that often controls my day-to-day life."
I'd often be seen in nightclubs wearing an electronic pain relief device and my bag was always full of heat pads and painkillers, though I missed out on things when the pain got too bad. I would often have to leave lectures early when the pain became unbearable. It was frustrating that my education was being compromised.
Since endometriosis still isn't talked about as much as it should be, I felt I was constantly explaining to lecturers, managers and peers, what I was going through and why I had to have certain routines in place, which often felt taboo rather than empowering.
It made my experiences with things like sex and alcohol especially complicated. These are things I feel are seen as ‘rites of passage’ in student life. This took a toll on my mental health, it was hard to feel 'normal' when struggling with things that weren't a big deal for my peers. It was also difficult feeling that I came across as lazy when living in a house share for the first time.
After seven years of visiting the doctor, I am now (at time of writing) preparing for my first laparoscopy. I'm keen to open a wider and more positive conversation surrounding the condition. I found it incredibly comforting to know there was not only a word for what I was experiencing, but also a community of people going through the same. From there, I was able to find resources and start healing mentally."
Since sharing her story, Holly has shared the brilliant news with us that she will be graduating from University with a 2:1. Holly hopes that in sharing her story, she can help others to feel less alone a that they too can have a fulfilling student experience despite the challenges endometriosis can bring. Congratulations Holly!
Endometriosis UK's specialist advisor Joanne Hanley says, "With a lack of awareness, those with endometriosis feel they need to explain their condition and symptoms to gain understanding from others. With changing environments, whether this be in education or work settings, having to have these conversations with new people can be daunting.
Although overwhelming, it can be helpful to speak out about your diagnosis, whether this be with a friend, teacher/lecturer, or colleague. I advise all adolescents and young adults in education to reach out to their school nurse or teacher, those within colleges and university should access student support and student services for guidance and support.
Creating awareness and speaking out about your endometriosis and symptoms allows for adjustments to be made to support you. Simple things like toilet passes and access to sanitary products can help reduce worry and stress."
