At this time of year, the phrase ‘back to school’ is commonly used, for some it can be an exciting time, starting a new class, college, university, or returning to work after the summer holidays. For others the thought of going back to school can be one of worry and anticipation. Living with endometriosis can be challenging and it’s important to recognise the challenges people may face.
We reached out to our community, asking for people to share their experiences and tips. There was a great response and from this we were able to identify some common themes, the biggest being communication.
Here's just some of what you had to say:
- "Your parents can have difficult conversations at school for you if you're feeling anxious. You don't need to do this alone."
- “Student Support or Student Services at your Uni or College are a good starting point if you don’t know who to speak to about your diagnosis and needs.”
- "Endometriosis at school can be HARD. Just know that there are people who get it."
- “Look for support groups within your town/ city, this has really helped me.”
- “If you can, dictate or voice note any thoughts you have if you don’t have the energy to type or write them down at the time”
- “Create a care package/ emergency kit for your bag. Mine has pain relief, spare pads and underwear etc. Even if you don’t need it, it can put your mind at rest knowing it’s there.”
- “If you’re comfortable doing so, tell your peers. Communication really helps. Even just one trusted friend can make a difference.”
- “Remember, it’s unlikely that you’re the only one going through this. Just knowing that you’re not alone can help.”
- “Take the time to rest when you need it, wear comfy clothes for lectures – and bring snacks!”
- "Don't be afraid to ask for what you need, you've got this."
Endometriosis Clinical Nurse Specialist and Endometriosis UK’s specialist advisor Joanne Hanley says, “My biggest tip is communication, having people you can talk to about your symptoms and diagnosis. We advise adolescents and young adults in education to reach out to their school nurse, teacher or student services so that they are aware of their diagnosis.
If you don’t feel comfortable doing this, then it’s okay to ask a parent or guardian to step in. For those that may have to leave class to use the bathroom for example, it can be better that your teachers have an understanding so that you can avoid feeling that you have to explain yourself each time.”
Thank you to those who submitted their tips, we love to see the community coming together to support one another. Please do share these tips with your loved ones heading back into education this year.
If you need support, our services are here for you. Check out our support services page for options to connect with others with lived experience of endometriosis.
