Personal stories
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Hannah's Story: Swimming for Endo
Meet Hannah – an incredible fundraiser who took on a huge 75km swimming challenge for Endometriosis UK this March for Endometriosis Action Month. Today, she shares why her endometriosis journey motivated her to take on this challenge, how it went, and her words of advice and encouragement for those taking part in Swim for Endo this May.
Louise's Story
“I began to seek medical attention for my symptoms when I was 18 years old - I wasn't aware of endometriosis and was consistently told that 'some women's periods are just painful'.”
Halle's Story
“We deserve to be believed, we deserve better research, and we deserve faster diagnosis. Endometriosis is not “just a bad period,” and speaking about it is how change begins.”
Saverra's Story
"I followed doctors’ advice, took prescribed medications, but they never worked. The only reason I was referred for laparoscopic surgery was because I mentioned I wanted to have a child. My pain alone wasn’t enough to be taken seriously."
Lisa's Story
"Endometriosis has shaped my education, my working life, my relationships, and my mental wellbeing. It has required resilience I never expected to need - not just to live with the condition, but to access care for it."
Taya's Story
"I realised that it wasn't normal to need a week off school every month for my cramps. None of my friends experienced this and I couldn't understand why I did. This sparked an urge to research myself. I began to look up my symptoms and eventually found endometriosis. It all began to make sense."
London to Edinburgh: Jonathan's Story
On Saturday 22nd November 2025, fundraiser Jonathan will be taking on the epic challenge of running over 400 miles from Buckingham Palace to Edinburgh Castle. Jonathan plans on doing this in just 9 days - highlighting the nearly 9 years it currently takes on average to get a diagnosis of endometriosis in the UK.
Living Through a Medically Induced Menopause: Britt's Story
"I never thought that at 30 I’d be contemplating menopause, let alone going through it at the same time as my mum. "
Catherine's Story
"Looking back, the advice I would now give my teenage self is to really trust in your own experience more, and be braver to talk about it and to say this isn't right. I need help."
Emma's Story
"I felt like I was battling something that no one really knew about, and I myself didn't really know."
Zainab's Story
"Pain is not a rite of passage. So if it's impacting your daily life, your studies, that's not normal. And you have every right to advocate for yourself and to seek answers."
Kate's Story
“I hope to share my story in the hope that other people experiencing similar symptoms will feel less alone, and to raise awareness of the urgent need for better understanding, diagnosis, and treatment of endometriosis.”
